South Lancs Branch
A warm welcome to the South Lancs Branch of the MND Association (MNDA)
We have a new venue for our face to face meetings at Blackbrook Rugby and Recreational Club on the 3rd Wedensday of each month (except December) at the usual time, 7:30pm.
Our March meeting will be our AGM. We will post details nearer the time in March.
We look forward to seeing those of you who can attend the monthly meetings.
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South Lancs Branch Monthly Meetings for 2023
Jan 18, 2023 19:30
Feb 15, 2023 19:30
Mar 15, 2023 19:30 (AGM)
Apr 19, 2023 19:30
May 17, 2023 19:30
Jun 21,2023 19:30 (MND Awareness Film Evening at Birchwood Park)
Jul 20, 2023 19:30
Aug 16, 2023 19:30
Sep 20, 2023 19:30
Oct 18, 2023 19:30
Nov 15, 2023 19:30
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The South Lancs Branch covers St.Helens and Warrington in the south through Cronton, Whiston, Leigh, Wigan, to Standish Skelmersdale and Burscough in the north. We hold get-togethers every 3rd Wednesday of the month at Blackbrook Rugby and Recreational Club, 64 Boardmans Lane, St. Helens, WA11 9BB at 7:30pm. We always welcome new faces to join us for a cuppa and a chat. Our venue is modern, wheelchair friendly and very welcoming. Meetings and Parking are free.
Contact our chairperson on mndachairsouthlancs@gmail.com or 07590 266 849 for more details.
The branch is run entirely by volunteers and aims to provide the best possible support to local people with MND, their families, carers and those close to them.
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What we do:
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We offer emotional, practical and financial support.
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Provide a link with other vital services where needed, through our team of trained Association Visitors.
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Hold regular meetings and other events in the area.
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Liaise with local health and social care professionals to influence and improve services for people with MND.
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Campaign to influence and raise awareness of the disease in the wider community.
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Support and organise fundraising events to contribute to things that improve the quality of life for people living with MND in the South Lancs area, to pay for equipment not provided elsewhere and to help fund MNDA care and national research projects.
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We had a fantastic time at the 2021 Charity Ball on Saturday the 20th of November 2021.
To book for plce for next year, contact Cris on 07590 266 849 or email mndafundraisingsouthlancs@gmail.com for more details or to book your tickets or sponsorship deal.
If you can help here's the link to our just giving page. https://www.justgiving.com/fundraising/mnda-south-lancs-branch
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About MND / ALS
What is Motor Neurone Disease (MND)?
Motor neurone disease (MND) describes a group of diseases that affect the nerves (motor neurones) in the brain and spinal cord that tell your muscles what to do. With MND, messages from these nerves gradually stop reaching the muscles, leading them to weaken, stiffen and waste. Watch the short animation shown above for an overview about the disease, then select from the following to find out more. Our information covers health and social care in England, Wales and Northern Ireland – please contact MND Scotland if you live in Scotland.
If you are living with or close to someone with motor neurone disease (MND), the MNDA 'About MND' web hub is designed to help you. It also answers common questions about MND and Kennedy’s disease, including how the disease is diagnosed, and how to manage daily life, access support and find information.
Click here for more information 'About MND'..
South Lancs Branch now has a new Instagram Page.
You'll find links to our each of our Social Media Feeds on each page on our website, look for the Social Bar Icons at the bottom-left of each page and simply click the icon for the feed that you are interested in.
A huge thank-you to Bill Horton and the team at Salford Community Walking Football Club who have raised £500 for the MND Asociation.
If you can help here's the link to our just giving page. https://www.justgiving.com/fundraising/mnda-south-lancs-branch
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Big thanks to all who participated in our Xmas virtual quiz night event on the 12th of December 2020. Email fundraisingsouthlancs@gmail.com or scan or click on the QR code for more details of fundraising events.
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Save the Dates.
A Selection of some of our fantastic events for 2023...
We'll be at Warrington Disability Awareness Day ("DAD") at Walton Hall Gardens in Warrington on Sunday the 16th of July 2023. Why not pop in and see what's on offer at the world's largest 'not for profit' voluntary-led disability exhibition, held annually in a huge tented village within the grounds of Walton Hall Gardens in Warrington'.
Entry to the show ground is completely FREE and so is the programme.
Visit https://www.disabilityawarenessday.org.uk/ for more information.
Thank-you all for coming out to support the MNDA and the South Lancs Branch at our Totally Amaze-balls 2018 MNDA Charity Ball. We'll be back with the 2021 Charity Ball on Saturday the 20th of November 2021.
See the flyer at the top of this page for more details..
The 5th Annual MNDA Awareness Film Evening will be back on the 21st June 2023 (Global MND Awareness Day).
South Lancs Branch Just Giving Page
Our branch has a Just Giving page which supports all of the branch fundraising events thoughout the year. Donating through the site is simple, fast and totally secure! We guarantee that the money raised here will go to helping people living with MND and their families in the South Lancs area. Thanks.
Emergency Winter Appeal
The South Lancs Branch of the Motor Neurone Disease (MND) Association has launched an Emergency Appeal for donations to maintain their vital support for people living with MND, a terminal illness.
Local people with MND turn to the South Lancs Branch for advice, face-to-face meetings and importantly can apply for financial grants to help improve their quality of life.
The MND Association expect to lose over £2 million this year due to the cancellation of community and sporting events as a result of the COVID-19 pandemic. But our fight against MND can’t be delayed. Local people affected by the disease need our support now, they need their voices heard today.
But with the COVID-19 restrictions continuing, volunteers at the South Lancs Branch are determined to find other ways to raise money to continue supporting local people facing the devastating illness.
Our branch is run entirely by volunteers and provides vital support and services support to local people with MND, their families, carers and those close to them.
People with MND are extremely vulnerable and are relying on our help and support now more than ever.
Around 150 people are living with this brutal disease in the South Lancs area, MND is a fatal, rapidly progressing disease which affects the brain and spinal cord. It attacks the nerves that control movement and eventually leaves people unable to move, communicate or breathe. It kills a third of people within a year of diagnosis and half within two years. There is no cure. Thank-you.
What is the Act to Adapt campaign?
Act to Adapt is a Motor Neurone Disease Association campaign to advocate for accessible homes and a fairer and faster system for delivering housing adaptations for people with motor neurone disease (MND).
Currently, many people living with MND face significant challenges when having to adapt their homes or move to accessible housing. These include high costs, a lengthy process and lack of information and support. Without an accessible home, people living with MND may be trapped in one room, unable to reach the bathroom or get out of the front door. In some cases, the COVID-19 pandemic and the need to self-isolate has exacerbated the situation.
The Act to Adapt report sets out recommendations for local and national governments to help people living with MND and others in desperate need of accessible housing, based on good practice.
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A huge thank-you to Laura & Jaqueline who raised over £1000 for the MND Asociation by doing a sponsored walk from Wrightington Hospital to Wigan Infirmary honouring their mum on the 18th of July
If you can help here's the link to our just giving page. https://www.justgiving.com/fundraising/mnda-south-lancs-branch
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